July 28, 2019
And in our final profile in our July campaign, we bring you the story
of this young zoology teacher from Chennai, Zoyeb Zia
Assistant Professor of Zoology. Ataxic. Gamer. Foodie. Champion for Rare
Diseases.
The many labels don’t do justice to Zoyeb Mohammed Zia‘s
remarkable journey. One that contains a multitude of stories and experiences.
Zoyeb was playing football in high school when he realised something was not
quite okay.
“I was in Class 11 and while playing football, I was unable to kick the ball.
I had no idea why. Then, over a period, I found my walk was becoming unstable
and I needed support”, recalls the Chennai-based research student and
teacher.
Zoyeb, who was good at sports and academics in school found he was unable to
keep up. His reaction was to withdraw from friends and family. Worried, his
parents put him through a series of tests and Zoyeb was diagnosed with
spinocerebellar ataxia, a rare neurological disorder in which
the region of the brain that controls movement begins to deteriorate,
affecting coordination and body movement.
We had not heard about ataxia till then. It started as slight imbalance in
his walk and poor coordination in his hands and legs.Zoyeb noticed the
changes first and kept this hidden for some time. But soon it became
apparent as he started dropping things, banging into doors and walls. –
strong>Iftikhar Mohammed Zia, Zoyeb’s father
It was a period of intense turmoil for Zoyeb and his parents. Zoyeb even
contemplated quitting studies, when his school stepped up in a big way.
Suma Padmanabhan, Former Principal, Asan Memorial School,
whom the Zias confided in, realized the child was hesitant to speak about his
condition and chose to break the ice in an empathic manner.
“I brought up the subject of people with disabilities and the need for
support and inclusion in my class so that Zoyeb felt comfortable”, says
Padmanabhan. “By talking about it openly, Zoyeb felt comfortable reaching
out”.
The Asan Memorial School also moved his classes from the top floor to the
ground floor to make it easier for him to attend class. He was given extra
lessons to make up for times he was unwell. “He is such a wonderful child”,
says Padmanabhan. “Once we started helping him, he just blossomed and worked
even harder”.
“The school would arrange special classes for him when he was absent for some
time”, says Iftikhar, who quit working full-time to support his son’s future
dreams.
Zoyeb gradually started to overcome his worries and look to the future.
Passionate about biology, he decided to pursue the subject deeper.
“I plan to do a doctorate and teach and pursue research in genetics or
genomics”, says Zoyeb, who is an Assistant Professor in zoology at
The New College in Chennai. He cleared the State Level
Eligibility Test to qualify for the post of professor in the first attempt
and has been teaching for more than a year now.
“He is focused and has always been hardworking”, says Dr Asrar
Sheriff, Head, Zoology Department, The New College,
who was Zoyeb’s teacher and research guide. “He has some difficulties due to
his disability and we accommodated him. It is hard for him to do the number
of experiments mandated by the University Grants Commission, so the
assessments are mainly questions-based”.
In Zoyeb’s journey lies a larger message. That given support and confidence,
disability is not a barrier to achieving any goal.
“My advice to parents in similar situations is to build the confidence in the
person, show him/her different options, show them other achievers and chart
out a route for them to carve out their goals”, says Iftikhar.
A message that Zoyeb and his parents are looking to spread to a larger
audience in his capacity as a motivational speaker. They are linked with
organizations and groups working to help people with rare diseases.
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Source: https://newzhook.com/story/raredisease-ataxia-has-not-dented-zoyeb-zias-passion-to-study-zoology
